FAST has a vision of a world where lives are no longer limited by a diagnosis of Angelman syndrome.
Inspired by the mission and energy of FAST in the United States we are driven to address the lack of research and understanding into Angelman syndrome in Australia. Our combined energies create a powerful force in the search for therapeutic interventions and a cure to treat Angelman syndrome.
In an age where Angelman syndrome therapeutics are being developed on a global scale, FAST is working to make sure communities across the world are organized and prepared to participate in studies for potential therapeutics. FAST has affiliates in Canada, France, Italy, Latin America (Argentina, Chile, Colombia), Spain and the UK.
The mission of the Foundation for Angelman Syndrome Therapeutics Australia is to improve the quality of life for individuals with Angelman syndrome through timely diagnosis, access to best practices in care and treatments, and advancing research for a cure.
FAST Australia have three key priorities during the 23/24 financial year;
Continue to build on and expand our contribution to research with our Global Angelman Syndrome Registry.
a two year pilot of an Angelman Syndrome Clinic network, consisting of three Clinical Nurse Coordinators at multidisciplinary clinics in Melbourne, Sydney and Brisbane. The aim of this network is to support families and local caregivers navigating all aspects Angelman syndrome, and
to develop a project to address the underdiagnosis of Angelman syndrome in Australia
Our work also encompasses research partnerships and any opportunity to develop or participate in initatives that align with our goal.
Joining our community of changemakers and start making a difference!
From running a marathon to baking 1001 muffins, here's what our superstar fundraisers are already doing.
You are currently on page 1 of 1